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Friday, September 27, 2013
After thoughts about Parkinson's MJF and us
It is a shame what Parkinson's does to .people, famous or not. Watching Michael j Fox show was a bit of a disappointment, but it was great to see him on tv again. That said we all feel sorry for celebrities and what they have lost. Michael is lucky to get his life back, Linda can't sing, Mohammed Ali can't do much of anything. The thing is we have all lost every bit as much tthey have. Everyone I have met in this community is every bit as much a hero as any of them. I lost my career flying for the airline, so many have lost their dreams and hopes for retirement. In the end Parkinson's is so insidious it doesn't care who or why, it just takes and takes. MJF is the face of a foundation every morning we see the face of Parkinson's in the mirror. When we hold celebrities up as the face of this disease we sell our selves short. Every time we interact with people we are the face of Parkinson's, we do it without fanfare or hype. Looking for a sitcom to tell our story is not the way to inform, just telling people what is does more. When we set up at farmers markets we always have information about Parkinson's there. We do.it to.inform and to let pwp know about our support group. Television can give a tiny glimpse into our world, we are the reality.
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